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Senior Specialist, Health Communication and Reporting, NewSTEPs (Remote)

Association of Public Health Laboratories

This is a Contract position in Washington, DC posted August 4, 2022.

Salary: $81,000
– $87,000 Position Summary: The Sr.

Specialist, Health Communication and Reporting, Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) will manage activities related to developing, analyzing and creating health communications to report on the data and information within the NewSTEPs website and data repository.

This position will be responsible for implementing the communication and collaboration goal of NewSTEPs, overseeing all reporting and external communication activities.

This person will serve as the primary representative for NewSTEPs on activities related to data reports, multi-center studies and data trends.

Specifically, a successful Sr.

Specialist will focus their expertise on using data to help programs with improving outcomes and to advance health communications around newborn screening to a broad variety of Maternal and Child Health stakeholders.

The Sr.

Specialist, Health Communications and Reporting, reports to the Data Manager, NewSTEPs.

Duties & Responsibilities: RESPONSIBILITIES INCLUDE BUT ARE NOT LIMITED TO:Information SharingProvides information to public health partners pertaining to the information generated from the NewSTEPs Data RepositoryDevelops written communications and content for the NewSTEPs website, publications, reports and presentationsNewSTEPs website content managementWrites, edits and reviews content including digital communications and newslettersInterprets and communicates data analysis findings to a variety of audiences, translating data into communications.Advances APHL’s mission and NBS through presenting at national and international conferences, seminars, webinars, etc.

Leads APHL’s activities with stakeholders and national partners to integrate NBS activities into Maternal and Child Health (MCH) activities e.g., developing tailored reports using data from the NewSTEPs data repository and addressing needs of various stakeholders around MCH and communicationProvides NewSTEPs Website support and maintenance Reviews, Analyzes and Identifies Trends in NewSTEPs and Newborn Screening DataSupports NewSTEPs Data Repository data analysis for State Profiles, Quality Indicators and Aggregate Cases.Identifies trends in data within the NewSTEPs Data Repository for state newborn screening programs, regional and national levels.Determines data gaps or areas where data can be further refined, performing quality checks ensuring the data is accurate and representative of the true newborn screening program performance.Leads survey and outreach related activities with the APHL Quality Systems and Analytics programProvides Quality Improvement program support as a coach and mentor to participating state newborn screening programs Report Writing Reviews data gathered from states (e.g., disorder occurrence, practices, and performance measures) to ensure data is accurate, thorough, and consistent.

Produces summary reports using data collected in the NewSTEPs repository system that include descriptive statistics, quality indicators, and performance measures at the state, regional and national level.

Develops customized and routine NewSTEPs documents, reports, and correspondence for various partners and stakeholders.

Contributes to the development, dissemination, analysis and reporting of the public health impact survey commissioned by the Advisory Committee of Heritable Conditions in Newborns and ChildrenContributes to other communication activities involving the development of written communications as needed and as appropriate Outreach and Communication with State Newborn Screening Programs on Data Trends Directs communication between the NewSTEPs Team and state newborn screening programs to determine any areas of focus for current and future reportingTracks topical trends and emerging priorities in the public health community as well as in the newborn screening system to identify areas to focus communication efforts on a quarterly basisPerforms routine outreach to newborn screening programs to assess gaps in health communication and data/reporting specific needs, and addresses these gaps.

Coordination of Multi-Center StudiesWith the goal of determining how to use data to improve program outcomes, the Sr.

Specialist will identify the need for, coordinate and implement multi-center studies as needed to collect additional data, analyze data and present reports on current state of newborn screening programs.Issue recommendations for continuous quality improvement and articulate the national landscape in ways that have previously not been done.

Data Quality Improvement Summarizes data, identifies trends, and produces quality improvement reports for newborn screening programs.

Communicates regularly with the Newborn Screening and Genetics (NBSG) leadership to discuss user feedback, input from key stakeholders, and progress implementing the system among the state programs.

Evaluates the success and impact of the NewSTEPs data repository system with NBS programs through their participation and utilization of reports and data infographics.Monitors and collaborates in conjunction with NewSTEPs Data Team to design workshops and webinars to train state newborn screening program personnel on the requirements and features of the data repository system, submitting/entering data and querying data/generating reports.

Determines gaps in technical proficiency from the newborn screening community.

Workgroup ManagementServes as staff liaison for the Hemoglobinopathy Workgroup, which develops educational materials, trainings and resources for sickle cell disease screening in the US and globally.

Serve as staff liaison for ad hoc workgroups and taskforces established to support multi-center studies or the health communication and data reporting goals of this position.

Employment Standards
– Education and Experience: OVERALL QUALIFICATIONS:This position requires a responsive, committed individual who recognizes the impact of the work on the organization as a whole.

The requirements listed below are representative of the knowledge, skill and/or ability required.

Reasonable accommodation may be made to enable individuals with disabilities to perform the essential functions.

Qualifications:MPH/MS in health-related field preferred.Minimum of three years of experience in newborn screening, public health, and/or health informatics.

Knowledge:
•Strong knowledge of NBS with the expectation of being able to internalize and understand both case definitions and quality indicators
•Experience analyzing data and developing reports
•Project management skills
•Excellent interpersonal skills
•Exceptional written and oral communication skills Skills:
•Computer literacy
•Applicant must be experienced with a Windows operating system.

This includes Excel and Word
•Team Player with a positive attitude
•Keen sense of confidentiality
•Capable of working under deadlines Work Environment: Work environment characteristics described here are representative of those that must be met by an employee to successfully perform the essential functions of this job.

Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

While performing the duties of this job, the employee could be exposed to outdoor weather conditions prevalent at the time.

The noise level in the work environment may vary from light to moderate depending on the location.

Physical Demands: The physical demands described here are representative of those that must be met by a colleague to successfully perform the essential functions of this job.

Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

While performing the duties of this job, the colleague is required to sit for long periods at a time; type using a computer keyboard; visually read information off of a computer monitor; talk, hear, and orally communicate information over the telephone.

Specific vision abilities required by the job include close vision and color vision and the ability to adjust focus.

Criteria for Evaluation: Performance evaluation will be based on the abilities in meeting the criteria outlined herein.

Reports To: Data Manager, NewSTEPs